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Showing posts from September, 2018

27th September

The last few days have been very hard, Tomorrow I have a nurse from LOROS coming and am hoping she will be able to help with pain relief etc.

23rd September

No news. Some days are better than others,

18th September

Had a good meeting with the doctor yesterday. Pretty much as expected – I am being transferred to the end of life team in Leicester, which I think will be based at LOROS which is a charity and will include help from Macmillan. This is what the GP suggested was best too, so everything will be brought together. I feel I will be as well prepared as possible now and won’t worry about having to struggle to get the care I want. The doctor said my tiredness was simply the cancer using all my energy and that he expected that would just continue to get worse and I would gradually fade away rather than any dramatic event. I guess that is what I would have chosen. He thought it would be “ a few weeks” rather than days, though possibly a few months. I would rather it didn’t go on too long, but while I am in no pain or distress there’s no real problem. Seems like a funny bit of good news, but Jan and I both came away quite pleased and feel we are as well prepared as possible.

16th September

No news really. I am very tired and unable to do much, but my pain is under control and I am sleeping OK. I see my consultant tomorrow - not sure if I will learn much but if I do, I will try and add a post to let you know. My GP has been very good and I feel I am as well prepared as I can be.

9th September

Sorry for the lack of updates for a while - I don't have any energy most of the time. I'm afraid things are moving on and I am more tired and poorly every day.

3rd September

I got out of hospital last night after much waiting around for the scan. The lump under my am is still unpleasant, but the doctors thought I could manage it at home, which is much nicer for me. The lumps around my stomach have got a fair bit worse and I am now on a couple of types of morphine which is helping the pain. I've not been able to do much today other than lie on the sofa, but it is nice to be home.